Been an eventful week...
Sunday saw a very rare family outing to watch Frank Turner at the Manchetser Arena. It was Alex & Callums first ever gig and they participated with full gusto, singing every word, jumping and clapping at every opportunity. Despite Franks back problems it was a tremendous gig and would rank in the top 5 of my all time favourites. I hope to see him again in the future although that may well depend on my health more than his.
On Friday, Valentines Day, it was my monthly visit to Manchester Royal Infirmary. Not the most romantic of days for Jen, but my favourite day of the month as it's the only time Jen and I get together. We don't get to go out at night and there always seems to be someone shouting "Mum!" or "Dad!" fights to referee, or, tears to wipe.
Friday was important as we received the results of the recent skeletal survey I had. As feared the recent X-rays show a couple of lesions on my skull, evidence that the Myeloma is attacking the bone from the outside. Together with my high para-protein levels and high light chain readings point to disease progression although we have agreed to hold off with chemotherapy until further progression. The first batch of chemo is the most successful and so we want it to be at a time it will be most effective.
It's been a tough week for us both and we half expected the news we got. It's been stressful to say the least, made more difficult by Jens illness, but friends who have sent good luck messages and that have been genuinely rooting for us have made it more bearable. We are really grateful. It's a shame that we don't get more support from closer to home, but that's the beauty of families I suppose!!!
We continue to be positive and whilst these lesions are a black cloud we are focusing on the silver lining that treatment can be delayed for the time being.
In the meantime download some Frank Turner - hopefully you will be as uplifted as we were last Sunday. In one of his songs, I knew Prufock before he got famous, there is a line that sums up where we are at the moment.
"They help us with remembering that the only thing that's left to do is live"
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