Wednesday, 10 December 2014
Food Banks and Football
I'm not a religious person. In fact I struggle to believe in God or any supreme being. So I read the Archbishop of Canterbury's recent article of food banks with interest (I hasten to add I read it on the BBC website and not in the Mail on Sunday!!!) http://www.bbc.co.uk/news/uk-30366020
Sadly food banks are now an accepted part of our society, even here in Wigan, when 5 years ago they were unheard of. The people that access them aren't your stereotypical soup kitchen diners either. There are a lot of working people who simply don't have enough money to buy food once they've paid for rent, mortgages, fuel (gas, electricity, water and petrol). The story in the article highlighted the family that had to access the food bank because they needed 2 new tyres for the car so they could continue to get to work. This struck a particular chord with me.
I shelled out £130 on Tuesday for 2 new tyres for my car, 2 weeks before Christmas when your kids want the latest gadgets, clothes etc isn't a great time for that to happen. I'm lucky though that I'm not alternating food with Jen just to feed the kids. Don't get me wrong the kids wont be getting Xbox Ones each as neatly requested on their Christmas lists, but they'll do well and they're very lucky. Luckier than they'll ever appreciate.
This week my colleagues and I are trying to break the Guinness World Record for the biggest food hamper in the world. We are having Christmas jumper day and, in exchange for wearing your Christmas jumper to work, you need to bring in some food for the food hamper. The hamper will then be divided between the food banks in Leigh and Wigan in preparation for the busy time of Christmas.
The Wigan food bank is run by local charity The Brick http://thebrick.org.uk/ As well as provide support to Rough Sleepers they have a fantastic resource centre where the folk they are supporting get the opportunities to get some work experience and learn some key skills as part of their wider rehabilitation. The Resource Centre refurbishes furniture, bikes, computers and much more, and then sells them at discounted rates. The funds are then recycled into the project allowing growth.
Many rough sleepers are not there by choice. Many have made some poor life choices or had some bad luck and its the fabulous work of charities like The Brick that provide hope to some of societies most disengaged people.
I was delighted to see that the Latics fans considering boycotting the Boxing Day fixture at Elland Road due to ticket prices are encouraging fellow boycotees to donate their ticket money to The Brick http://thisnorthernsoul.co.uk/2014/12/an-open-letter/ I was equally appalled that Leeds Utd were even asking £41 for an adult ticket, at Christmas, or any other time of year for that matter. To ask that sort of money for a second tier English football fixture between 2 sides realistically looking at avoiding relegation and achieving mid-table mediocrity is nothing short of disgraceful. Particularly given what I have discussed earlier in this piece.
Latics have had some bad press recently and Latics fans are often much maligned. However the lads I know are really decent and this shows that they care and understand where football fits in to wider society and, unlike some of their bigger neighbours, it isn't the be all and end all. The people that will be supported as a result of their kind donations might well have been Latics fans had their journeys not headed off down different paths.
Lets hope Christmas 2014 is the turning point for everyone. Lets hope the Brick goes from strength to strength in their support and rehabilitation of rough sleepers in Wigan. Lets hope our food banks go out of business because they are not needed any longer. Lets hope Latics smash 5 past Leeds and go on a run that sees them make the play offs and win promotion via another trip to Wembley.
Most of all I hope you have a very happy holiday.
Much love xx
Saturday, 15 February 2014
Frank Turner & The Lesions of Doom......
Been an eventful week...
Sunday saw a very rare family outing to watch Frank Turner at the Manchetser Arena. It was Alex & Callums first ever gig and they participated with full gusto, singing every word, jumping and clapping at every opportunity. Despite Franks back problems it was a tremendous gig and would rank in the top 5 of my all time favourites. I hope to see him again in the future although that may well depend on my health more than his.
On Friday, Valentines Day, it was my monthly visit to Manchester Royal Infirmary. Not the most romantic of days for Jen, but my favourite day of the month as it's the only time Jen and I get together. We don't get to go out at night and there always seems to be someone shouting "Mum!" or "Dad!" fights to referee, or, tears to wipe.
Friday was important as we received the results of the recent skeletal survey I had. As feared the recent X-rays show a couple of lesions on my skull, evidence that the Myeloma is attacking the bone from the outside. Together with my high para-protein levels and high light chain readings point to disease progression although we have agreed to hold off with chemotherapy until further progression. The first batch of chemo is the most successful and so we want it to be at a time it will be most effective.
It's been a tough week for us both and we half expected the news we got. It's been stressful to say the least, made more difficult by Jens illness, but friends who have sent good luck messages and that have been genuinely rooting for us have made it more bearable. We are really grateful. It's a shame that we don't get more support from closer to home, but that's the beauty of families I suppose!!!
We continue to be positive and whilst these lesions are a black cloud we are focusing on the silver lining that treatment can be delayed for the time being.
In the meantime download some Frank Turner - hopefully you will be as uplifted as we were last Sunday. In one of his songs, I knew Prufock before he got famous, there is a line that sums up where we are at the moment.
"They help us with remembering that the only thing that's left to do is live"
Sunday saw a very rare family outing to watch Frank Turner at the Manchetser Arena. It was Alex & Callums first ever gig and they participated with full gusto, singing every word, jumping and clapping at every opportunity. Despite Franks back problems it was a tremendous gig and would rank in the top 5 of my all time favourites. I hope to see him again in the future although that may well depend on my health more than his.
On Friday, Valentines Day, it was my monthly visit to Manchester Royal Infirmary. Not the most romantic of days for Jen, but my favourite day of the month as it's the only time Jen and I get together. We don't get to go out at night and there always seems to be someone shouting "Mum!" or "Dad!" fights to referee, or, tears to wipe.
Friday was important as we received the results of the recent skeletal survey I had. As feared the recent X-rays show a couple of lesions on my skull, evidence that the Myeloma is attacking the bone from the outside. Together with my high para-protein levels and high light chain readings point to disease progression although we have agreed to hold off with chemotherapy until further progression. The first batch of chemo is the most successful and so we want it to be at a time it will be most effective.
It's been a tough week for us both and we half expected the news we got. It's been stressful to say the least, made more difficult by Jens illness, but friends who have sent good luck messages and that have been genuinely rooting for us have made it more bearable. We are really grateful. It's a shame that we don't get more support from closer to home, but that's the beauty of families I suppose!!!
We continue to be positive and whilst these lesions are a black cloud we are focusing on the silver lining that treatment can be delayed for the time being.
In the meantime download some Frank Turner - hopefully you will be as uplifted as we were last Sunday. In one of his songs, I knew Prufock before he got famous, there is a line that sums up where we are at the moment.
"They help us with remembering that the only thing that's left to do is live"
Friday, 7 February 2014
Reality bites
My colleague, boss and friend Vicky Bannister published a blog last year called "When carers go bad" it's brilliant and you can read it here http://vickyandclem.blogspot.co.uk/2013/03/when-carers-go-bad.html
I've recently encountered the same sort of thing. My Myeloma appears to be pointing towards the start of chemotherapy. My light chains are up significantly, I've got increased bone pain and my para-protein levels remain high. On top of that I have had repeat infections but more recently a chest infection that has knocked me for six.
So what do you do when you are battling all of this and your main carer, your rock, the person who maintains the equilibrium, the person who makes the house run, the person who also looks after her 82 year old mum falls ill. Well it all falls apart.
Jen has been really poorly. I don't remember her being quite so ill - even after emergency c-section which involved blood transfusions. The same chest infection has knocked her for 6, I would even say it was 7!!
So this week I've tried to, had to, do more to help. I've done a bit of cooking - was quite proud of my fish pie with potato and leek mash. Done some washing - didn't manage to run the colours, as well as do packed lunches, school runs and bits and bobs of shopping - we don't half go through milk - on top of not being A1 myself a having a trip to Manchester Royal for a scan.
It's made me realise how much Jen does and how she never stops, how running the house, looking after her mum, and me, and the kids, as well as working full time - eventually the tank becomes empty. It's also made me realise what good friends we have, friends who took time off work to pick Al & Cal up from school when I was in hospital and Jen unfit to drive.
It does make me worry about the future and how we will cope if Chemotherapy comes. But that's a worry for another day. The main thing now is to get Jen fit again. And I must help more to relieve the burden on her.
Next clinic is Friday 14/2 - Valentines Day. Update to follow.
I've recently encountered the same sort of thing. My Myeloma appears to be pointing towards the start of chemotherapy. My light chains are up significantly, I've got increased bone pain and my para-protein levels remain high. On top of that I have had repeat infections but more recently a chest infection that has knocked me for six.
So what do you do when you are battling all of this and your main carer, your rock, the person who maintains the equilibrium, the person who makes the house run, the person who also looks after her 82 year old mum falls ill. Well it all falls apart.
Jen has been really poorly. I don't remember her being quite so ill - even after emergency c-section which involved blood transfusions. The same chest infection has knocked her for 6, I would even say it was 7!!
So this week I've tried to, had to, do more to help. I've done a bit of cooking - was quite proud of my fish pie with potato and leek mash. Done some washing - didn't manage to run the colours, as well as do packed lunches, school runs and bits and bobs of shopping - we don't half go through milk - on top of not being A1 myself a having a trip to Manchester Royal for a scan.
It's made me realise how much Jen does and how she never stops, how running the house, looking after her mum, and me, and the kids, as well as working full time - eventually the tank becomes empty. It's also made me realise what good friends we have, friends who took time off work to pick Al & Cal up from school when I was in hospital and Jen unfit to drive.
It does make me worry about the future and how we will cope if Chemotherapy comes. But that's a worry for another day. The main thing now is to get Jen fit again. And I must help more to relieve the burden on her.
Next clinic is Friday 14/2 - Valentines Day. Update to follow.
Friday, 8 February 2013
Zometa Infusion? No thanks I prefer PG Tips
Its been a busy week since my appointment at MRI last Friday, hence my delay in posting this blog.
Overall the results remain good, my bloods remain as stable as can be expected which is good. As mentioned in previous blogs I suffer from bone pain in my hips and pelvis. That's why I fidget a lot when I'm sat down - Ive not got ants in my pants - honestly!!!
The specialist has decided that I need to start some treatment which as well as helping with bone regrowth will hopefully help with pain relief. The drug is a zoledronic acid with a trade name of Zometa. You can find out more about Zometa here When the specialist told me they would start this treatment he said "We will start you with some Zometa Infusions" I thought he was offering me a cup of herbal tea which I'm not keen on!!!!
I will have 15 minutes of intravenous infusions once a month at the same time as my monthly check up so that saves a second journey to MRI. First one is 8th March, the date of my next appointment and I'll let you know how I get on.
Overall the results remain good, my bloods remain as stable as can be expected which is good. As mentioned in previous blogs I suffer from bone pain in my hips and pelvis. That's why I fidget a lot when I'm sat down - Ive not got ants in my pants - honestly!!!
The specialist has decided that I need to start some treatment which as well as helping with bone regrowth will hopefully help with pain relief. The drug is a zoledronic acid with a trade name of Zometa. You can find out more about Zometa here When the specialist told me they would start this treatment he said "We will start you with some Zometa Infusions" I thought he was offering me a cup of herbal tea which I'm not keen on!!!!
I will have 15 minutes of intravenous infusions once a month at the same time as my monthly check up so that saves a second journey to MRI. First one is 8th March, the date of my next appointment and I'll let you know how I get on.
Thursday, 24 January 2013
Great club or simply great teas
When you are a young cricketer just starting out in the world of senior cricket you judge another club by the quality of their cricket teas.
Each Saturday and Sunday ladies, some men do get involved to be fair, but generally ladies, make the cricket teas. Some are simple affairs done on a tight budget generally sandwiches, crisps, salads and fruit/cake. Some however are more extravagant including warm food such as curries or chillies, hot pot or pies, Lasagne or pasties, chips, baked potatoes, ice creams, yoghurts, trifles and fairy cakes.
You will often hear younger cricketers, when they find out where we are playing next week say "Oh I love/hate it there.The teas are fantastic/crap" delete appropriately!!
As you get older though you judge a club on much wider issues such as the culture of a club or the facilities.
The culture of a club is about how they play the game, how they treat the opposition, opportunities for young players to play first team cricket - quite simply do they play the game hard but fair and are they the type of club you would be happy to have a pint with in the bar after the game?
Facilities are a slightly different kettle of fish. There are many clubs who have a great culture but simply don't have the money to invest in their facilities. They therefore struggle to attract new players or develop clear pathways from junior cricket into senior cricket.
Wigan Sports Club where I play cricket (quite badly I may add) and coordinate the junior section is one of those clubs. We have a great culture. This is largely down to the players but most credit should be given to club captain Mark Rowe. He has been instrumental in developing a fantastic culture at the club. Don't get me wrong when he leads the team out on a Saturday there is a steely determination in his eyes. His team play the game on the edge and play to win and on the odd occasion a player oversteps the mark, he instantly rectifies the situation and has a "quiet" word with the relevant player.
After each game the umpires score each team as to how they behave and how well the captain keeps control of his team. It's no coincidence that Rowie has received the top marks in this area, and Wigan have received the Spirit of Cricket award too, for the past 2 seasons.
We have though, struggled for years without investment in our facilities. The changing rooms and clubhouse badly need refurbishing. The cost to the club in utilities due to inefficient heating and lighting systems as well as essential maintenance costs each year is enormous. The cricket section badly need some new cricket nets and there are significant issues with drainage to the pitch too.
Now however we will begin to develop facilities to match our culture. Myself and Rowie set about applying for a grant from Sport England back in the autumn. We chose to submit a project to refurbish the changing rooms and the common areas in the clubhouse. If successful the work would benefit the whole club - Hockey and Squash as well as Cricket; would help attract new members and retain existing members.
The announcement today by the Sports & Tourism Minister of a maximum Inspired Facilities Grant of £50k is fantastic for the club.The club is match funding this to the tune of £31k meaning a £81k investment in changing room facilities at the club. We should be able to install energy efficient lighting, heating and hot water facilities - seeing a reduction in our utility bills. We should also see more attractive and functional changing rooms that require less maintenance too. We will also see new kitchen facilities so should see good cricket teas as well!!!
Not a bad effort for 2 blokes from Wigan - one a great cricketer, extremely intelligent, well educated man with thoroughly decent principles. Oh, and me!!
So hopefully over the next couple of years young and old cricketers of other clubs when they find out they are playing at Wigan the week after will say "Yes, they are a great club, great culture and great facilities. Oh and the teas aren't bad either!"
Each Saturday and Sunday ladies, some men do get involved to be fair, but generally ladies, make the cricket teas. Some are simple affairs done on a tight budget generally sandwiches, crisps, salads and fruit/cake. Some however are more extravagant including warm food such as curries or chillies, hot pot or pies, Lasagne or pasties, chips, baked potatoes, ice creams, yoghurts, trifles and fairy cakes.
You will often hear younger cricketers, when they find out where we are playing next week say "Oh I love/hate it there.The teas are fantastic/crap" delete appropriately!!
As you get older though you judge a club on much wider issues such as the culture of a club or the facilities.
The culture of a club is about how they play the game, how they treat the opposition, opportunities for young players to play first team cricket - quite simply do they play the game hard but fair and are they the type of club you would be happy to have a pint with in the bar after the game?
Facilities are a slightly different kettle of fish. There are many clubs who have a great culture but simply don't have the money to invest in their facilities. They therefore struggle to attract new players or develop clear pathways from junior cricket into senior cricket.
Wigan Sports Club where I play cricket (quite badly I may add) and coordinate the junior section is one of those clubs. We have a great culture. This is largely down to the players but most credit should be given to club captain Mark Rowe. He has been instrumental in developing a fantastic culture at the club. Don't get me wrong when he leads the team out on a Saturday there is a steely determination in his eyes. His team play the game on the edge and play to win and on the odd occasion a player oversteps the mark, he instantly rectifies the situation and has a "quiet" word with the relevant player.
After each game the umpires score each team as to how they behave and how well the captain keeps control of his team. It's no coincidence that Rowie has received the top marks in this area, and Wigan have received the Spirit of Cricket award too, for the past 2 seasons.
We have though, struggled for years without investment in our facilities. The changing rooms and clubhouse badly need refurbishing. The cost to the club in utilities due to inefficient heating and lighting systems as well as essential maintenance costs each year is enormous. The cricket section badly need some new cricket nets and there are significant issues with drainage to the pitch too.
Now however we will begin to develop facilities to match our culture. Myself and Rowie set about applying for a grant from Sport England back in the autumn. We chose to submit a project to refurbish the changing rooms and the common areas in the clubhouse. If successful the work would benefit the whole club - Hockey and Squash as well as Cricket; would help attract new members and retain existing members.
The announcement today by the Sports & Tourism Minister of a maximum Inspired Facilities Grant of £50k is fantastic for the club.The club is match funding this to the tune of £31k meaning a £81k investment in changing room facilities at the club. We should be able to install energy efficient lighting, heating and hot water facilities - seeing a reduction in our utility bills. We should also see more attractive and functional changing rooms that require less maintenance too. We will also see new kitchen facilities so should see good cricket teas as well!!!
Not a bad effort for 2 blokes from Wigan - one a great cricketer, extremely intelligent, well educated man with thoroughly decent principles. Oh, and me!!
So hopefully over the next couple of years young and old cricketers of other clubs when they find out they are playing at Wigan the week after will say "Yes, they are a great club, great culture and great facilities. Oh and the teas aren't bad either!"
Thursday, 17 January 2013
I will (un) follow - Social Media - Censorship, Offence and Shock
Im a lover of Social Media. It's power is immense. Recently I have helped source a printer for a charity event and solved a friends technical problems for a presentation - just through tweeting a friend.
I Tweet and I blog. I also use Facebook, Yammer and Linked In.
I find them incredibly useful in my work life as well as being very informative and entertaining in my private life. Recently though events have made me question how I use them and the appropriateness of my use.
The Chairman of the Bolton, Bury and District Football League (BBDFL), Warren Barlow, recently received a 5 month suspension from office, imposed by the Lancashire FA for inappropriate Tweeting. I don't know enough about the case to comment here, suffice to say that Warren is incredibly passionate about grassroots football and can often find himself in the middle of emotive arguments. However he was suspended for passing a personal comment in an official position.
A colleague of mine recently Direct Messaged (DMd) me on Twitter informing me of a BBC parody account that I may find funny and subsequently choose to follow. They wouldn't tweet me as they felt it was too rude. I looked at the parody account, followed and instantly retweeted. The retweet contained 3 swear words - 2 fucks and a bastard. I was happy to retweet but my colleague wasn't.
So what rules do you use when you are considering blogging, tweeting or posting? What is acceptable and what isn't.
The rule of thumb that I use is "Would I say what I say in an unfamiliar city centre pub?
I'm quite happy to talk football with anyone, no matter where I am, although I admit I'm less likely to be received warmly talking about Latics in Burnley or trying to convince a Rangers fan that Henrik Larsson is the greatest Celtic number 7 - even better than King Kenny!
I'm also quite happy to talk endlessly about music - although I'm not well up on certain genres like Dance, Reggae or Rap.
I can talk politics especially Social and Housing policy and indeed waffle on about virtually any subject as good as the next man or woman. I'm likely to use the word fuck quite a lot, I'm also likely to refer to some people as bastards and other mildly offensive swear words. I am not racist or homophobic and am likely to positively challenge anyone that is.
So that's the rule I use. If I offend you via my Social Media then I would probably offend you in the pub.
Other people often have different standards. I read with interest the conditions attached to Greg Hoffmans iPhone that he got from his parents for Christmas http://www.dailymail.co.uk/news/article-2255285/Janelle-Hofmann-Mom-makes-son-13-sign-18-terms-conditions-giving-iPhone.html in short his mum, Janelle, made him sign a 20 point agreement before he could use the phone. Condition 9 is "Do not text, email, or say anything to someone that you would not say out loud with their parents in the room. Censor yourself."
I Tweet and I blog. I also use Facebook, Yammer and Linked In.
I find them incredibly useful in my work life as well as being very informative and entertaining in my private life. Recently though events have made me question how I use them and the appropriateness of my use.
The Chairman of the Bolton, Bury and District Football League (BBDFL), Warren Barlow, recently received a 5 month suspension from office, imposed by the Lancashire FA for inappropriate Tweeting. I don't know enough about the case to comment here, suffice to say that Warren is incredibly passionate about grassroots football and can often find himself in the middle of emotive arguments. However he was suspended for passing a personal comment in an official position.
A colleague of mine recently Direct Messaged (DMd) me on Twitter informing me of a BBC parody account that I may find funny and subsequently choose to follow. They wouldn't tweet me as they felt it was too rude. I looked at the parody account, followed and instantly retweeted. The retweet contained 3 swear words - 2 fucks and a bastard. I was happy to retweet but my colleague wasn't.
So what rules do you use when you are considering blogging, tweeting or posting? What is acceptable and what isn't.
The rule of thumb that I use is "Would I say what I say in an unfamiliar city centre pub?
I'm quite happy to talk football with anyone, no matter where I am, although I admit I'm less likely to be received warmly talking about Latics in Burnley or trying to convince a Rangers fan that Henrik Larsson is the greatest Celtic number 7 - even better than King Kenny!
I'm also quite happy to talk endlessly about music - although I'm not well up on certain genres like Dance, Reggae or Rap.
I can talk politics especially Social and Housing policy and indeed waffle on about virtually any subject as good as the next man or woman. I'm likely to use the word fuck quite a lot, I'm also likely to refer to some people as bastards and other mildly offensive swear words. I am not racist or homophobic and am likely to positively challenge anyone that is.
So that's the rule I use. If I offend you via my Social Media then I would probably offend you in the pub.
Other people often have different standards. I read with interest the conditions attached to Greg Hoffmans iPhone that he got from his parents for Christmas http://www.dailymail.co.uk/news/article-2255285/Janelle-Hofmann-Mom-makes-son-13-sign-18-terms-conditions-giving-iPhone.html in short his mum, Janelle, made him sign a 20 point agreement before he could use the phone. Condition 9 is "Do not text, email, or say anything to someone that you would not say out loud with their parents in the room. Censor yourself."
So everyone views what is acceptable slightly differently. Mrs Hoffman, my colleague, Warren Barlow and I and probably the millions of people using Social Media at this very moment will all use a different rule of thumb to censor ourselves effectively.
The easy ones to rule out are the illegal comments racist, homophobic, threats to kill etc.. if you made those comments in a pub or in front of your friends parents then you are likely to be assaulted, arrested or both and would probably deserve it.
The rest its fair to say, is down to our audience.
The rest its fair to say, is down to our audience.
So what do we do though if someone says something that offends us? There are 2 options I suppose
1. We either challenge the comment and put our view across; or
2. We ignore it, possibly tutting like Skippy the Kangaroo, and move on to the next comment. In the pub analogy we might move seats or even drink up and move on.
On Social Media we can choose to unfollow or unfriend someone but, because we are British, we feel we might upset the feelings of the person we are unfriending or unfollowing.
So if Im in a pub and Im spouting off and I offend you - Im sorry but you either need to move seats or drink up and move onto another pub.
If I offend you via Social Media then unfriend me or unfollow me - I wont be upset
Waits for loads of unfriending and unfollowing........
2. We ignore it, possibly tutting like Skippy the Kangaroo, and move on to the next comment. In the pub analogy we might move seats or even drink up and move on.
On Social Media we can choose to unfollow or unfriend someone but, because we are British, we feel we might upset the feelings of the person we are unfriending or unfollowing.
So if Im in a pub and Im spouting off and I offend you - Im sorry but you either need to move seats or drink up and move onto another pub.
If I offend you via Social Media then unfriend me or unfollow me - I wont be upset
Waits for loads of unfriending and unfollowing........
Friday, 21 December 2012
It's the End of the World as we know it, and I feel fine
The Mayans predicted the end of the world today, appropriately on Mad Friday too!!!
11.10am passed without incident. I was stuck in the waiting room at Manchester Royal Infirmary in a Myeloma clinic for my final check up of the year. I was back at MRI for the results of my MRI scan on my pelvis. You may recall from previous blogs that they found cause for concern following x-rays that they thought were lesions caused by the Myeloma.
Unfortunately the MRI scan is inconclusive - there is some bone damage and there are marks on the bone but the consultant is not 100% sure they are caused by the Myeloma. Although my blood levels remain affected - the amount of Myeloma is high, the amount of calcium is high, kidney function is impaired and white cells are low - they remain stable; so a decision to closely monitor has been made.
The most effective course of Chemotherapy is the first one and so they don't want to waste this and whilst I am now borderline for treatment they want to wait until a clear symptom of end organ damage is present before they start. This can change quickly and so this is why I remain on monthly check ups with some clear warning signals to look for.
This is all round good news. It means I can park the disease and enjoy Christmas with Jen and the kids - my next check up is 1st February 2013.
So today could have been a bad one, the Mayans aside, but in the words of Michael Stipe "It's the end of the world as we know it and I feel fine"
Have a very Happy Christmas and healthy, happy New Year
11.10am passed without incident. I was stuck in the waiting room at Manchester Royal Infirmary in a Myeloma clinic for my final check up of the year. I was back at MRI for the results of my MRI scan on my pelvis. You may recall from previous blogs that they found cause for concern following x-rays that they thought were lesions caused by the Myeloma.
Unfortunately the MRI scan is inconclusive - there is some bone damage and there are marks on the bone but the consultant is not 100% sure they are caused by the Myeloma. Although my blood levels remain affected - the amount of Myeloma is high, the amount of calcium is high, kidney function is impaired and white cells are low - they remain stable; so a decision to closely monitor has been made.
The most effective course of Chemotherapy is the first one and so they don't want to waste this and whilst I am now borderline for treatment they want to wait until a clear symptom of end organ damage is present before they start. This can change quickly and so this is why I remain on monthly check ups with some clear warning signals to look for.
This is all round good news. It means I can park the disease and enjoy Christmas with Jen and the kids - my next check up is 1st February 2013.
So today could have been a bad one, the Mayans aside, but in the words of Michael Stipe "It's the end of the world as we know it and I feel fine"
Have a very Happy Christmas and healthy, happy New Year
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